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Privacy Policy of the Vilnius University Lithuanian Population and Rare Diseases Biobank

This privacy policy was last updated on March 25, 2025.

The Lithuanian Population and Rare Diseases Biobank, which collects and stores a large number of protected samples and data, is an important strategic partner for experimental research in Lithuania. By providing reference samples and data from healthy Lithuanian population and those with rare diseases, it enables the expansion of human genome research in Lithuania, helps develop personalized medicine technologies and prevention or treatment protocols, creates opportunities for Lithuanian scientists to participate on equal terms in international genomic/post-genomic research programs, while increasing researchers' scientific competence, Vilnius University's scientific potential, and promoting the development of science and disease diagnostics in Lithuania.

This privacy policy applies to the activities of Vilnius University Lithuanian Population and Rare Diseases Biobank (hereinafter - "Biobank", "we" or "our"), including the Biobank's website. The Biobank is a sui generis unit of Vilnius University carrying out biobank activities as established in the Law on Biomedical Research Ethics of the Republic of Lithuania and other legal acts regulating biobank activities.